This week I thought I was just getting away with a couple of appointments today – one to have my port flushed (for which I wore my new shoes!) – which unfortunately she said has a moisture lesion and shouldn’t go swimming for another week :-(, and another with my oncologist to see where we’re up to on the treatment process (and yes, I look quite weary):


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It’s #waitingroomfeet 2 – about to speak to oncologist #whatcancerlookslike. Port site has a slight ‘lesion’ on it so can’t swim til next week…!

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So, this week, I now have:

I asked Dr Chittalia the following:

  1. The thyroid biopsy undertaken the other week was ‘level 2’, although the sample wasn’t great, but there’s no concern there, although likely to be a further double check later in the year.
  2. How many rounds of chemotherapy? No more than 4, but likely 3-4. Dosage likely to be 60ml per m2 (when regular is 75-100), or possibly less. I asked for as little as I need, please!
  3. We’re looking at denosumab rather than zometa for bone strengthening, which will start once the chemo drugs have finished, and be every 3-6 weeks, tied in with other infusions. This will continue indefinitely.
  4. Trastuzumab (Herceptin) and Pertuzumab (Perjeta) will start with the chemo, and will also continue indefinitely, as IV drugs. Oh, and he said the pertuzumab first time round tends to cause havoc with stomach…
  5. The Zoladex injections I’ve been told to not have any more, and to stop taking the Exemastane the week before chemo starts. It is likely that when I’m halfway through the chemotherapy I’ll be referred to start the process for an oophorectormy, to be undertaken around 2 months after the chemo finishes. *So that’s one less appointment each month!
  6. Double checked this study about tracers in the bone but not seen as relevant for now.

And I’ll next see Dr C in about 2 months, as if the chemotherapy date changes, he’ll just alter the prescriptions. Very much enjoyed a visit from Karen this evening to chill out over some food!

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