So what were you doing on the day that the government voted on the #BrexitVote?
Sat in a waiting room at Stepping Hill Hospital to find out the results of a liver MRI, and the spinal biopsy:
I was joking on Facebook about how long I was in the waiting room for (normal), and as I’ve now been silent for nearly 3 hours, I’m guessing that people have guessed that the news is not 100% good.
Good news: Nothing wrong with my liver, we can forget worrying about that
Bad news: the lump on my spine is a small mets (a really tiny one that has already reacted to chemo), so I am now categorically #Stage4, metastatic/secondary breast cancer. *Added* Primary cancer treatment is designed to be ‘curative’, secondary cancer is where the original cells have spread elsewhere in the body, and is not deemed curable, but can – they think in my case – be treated for many years as a chronic, rather than a terminal condition.
Good news: It’s really tiny, and they have lots of treatments in mind for it, including a trial, and these will be explained in detail with my appointment with the oncologist next Monday – they said they are really optimistic about the prognosis of keeping me going for a long time, keep getting on with work – they’ll just be a whole lot more tests, scans and treatments – and they emphasised the need to keep the long-term focus going that has been carrying me through so far – we’re going for that Professorship, keeping on with the gym, taking time out, and I need to keep asking for help…
Bad news: I’ll never be free of cancer – lovely BCN said you need time to grieve, time to chill, so I’m trying to let people know in one go.
Good news: I’m feeling relatively optimistic if a bit like I’ve been punched in the gut, and unsurprisingly full of random weepiness!
So, I’ll appreciate all your love, hugs, though you may not get much of a reply, not so much your stories of people you know who have died of similar, suggestions of kale and ‘magic remedies’… oh, and if anyone decides they want to paint my hallway, I have the tools! #waterygrin
Dr Bex Lewis is passionate about helping people engage with the digital world in a positive way, where she has more than 20 years’ experience. She is Senior Lecturer in Digital Marketing at Manchester Metropolitan University and Visiting Research Fellow at St John’s College, Durham University, with a particular interest in digital culture, persuasion and attitudinal change, especially how this affects the third sector, including faith organisations, and, after her breast cancer diagnosis in 2017, has started to research social media and cancer. Trained as a mass communications historian, she has written the original history of the poster Keep Calm and Carry On: The Truth Behind the Poster (Imperial War Museum, 2017), drawing upon her PhD research. She is Director of social media consultancy Digital Fingerprint, and author of Raising Children in a Digital Age: Enjoying the Best, Avoiding the Worst (Lion Hudson, 2014; second edition in process) as well as a number of book chapters, and regularly judges digital awards. She has a strong media presence, with her expertise featured in a wide range of publications and programmes, including national, international and specialist TV, radio and press, and can be found all over social media, typically as @drbexl.